APS Friends & Support Forum ~ Brought to you by the APS Foundation of America  Home 

Are you looking for Support for Antiphospholipid Antibody Syndrome, APS, APLS, APLA, Hughes Syndrome, or Sticky Blood?

Well you've come to the right place! This is an private forum for people who have Antiphospholipid Antibody Syndrome, friends, family, and caregivers.

If you register and join us you'll find a wealth of information and support on the inside as well as the latest APS and related news articles that you may not be able to find elsewhere. You'll also find friendship.

We strive to ensure that our participants have a safe place that is friendly and supportive because we know how horrible this disease can be.

Come to a place where people understand what you're going through because they've been there themselves. If you join our FREE private forum, you will finally be "home" where people can relate.

We hope that you'll join us on the inside and we cannot wait to get to know you better!


**We moved to Facebook!! Make sure you like us at: https://www.facebook.com/groups/APSFriendsandFamily/ **

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Welcome to the Forum Documents Sent to You!  Rating:  Rating
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 Posted: Monday April 26th, 2010 10:55 pm
   
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Staff
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Joined: Sunday September 11th, 2005
Location: USA
Posts: 956
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Since we are finding out people are not reading their emails or PMs they receive we are posting them here so everyone is aware what was sent to you. 

It is YOUR responsibility to read these items and fully comply with them.  You are responsible for reading ALL the links contained in these items as well.


This is what is sent to you via email when you join:

Welcome to APS Friends & Support Forum.

Thank you for joining our forum! Please make sure you read this entire email prior to activating your account. The information in this email is important and will help you navigate the forum and provides some general online information.

*Please* be sure to review the rules before you start posting: http://www.apsforum.com/forum4/15706.html  You will be held responsible for knowledge of and required to follow the rules of the forum whether you have actually read them or not.  Ignorance of the rules will not be accepted as an excuse.

After you activate your account, please read your private messages for further posting instructions.

Please click on the following URL to ACTIVATE your account:
[REMOVED]

Alternatively, you can copy & paste the URL in the address line of your browser, and press Enter.

Please add @apsfa.org to your safe senders or white list on your email program so our reply will not be flagged as spam.  The apsfa.org staff cannot fill out forms to "prove" we are not spam.

If you have any questions or concerns, feel free to email us at forum@apsfa.org. Our friendly staff members will be happy to assist you.

Thank you again for joining our forum, we look forward to getting to know you better.

APS Friends & Support Staff


Please Note: The Founders, Administrator(s), Assistant(s), Helpers, Greeter(s) & Staff of this forum are not medical doctors.  APS Foundation of America is not intended to replace standard doctor-patient visits, physical examination, and medical testing. Information given to members are only an opinion. All information should be confirmed with your personal doctor. Always seek the advice of a trained physician in person before seeking any new treatment regarding your medical diagnosis or condition. Any information received from APS Foundation of America is not intended to diagnose, treat, or cure. This site is for informational purposes only. Additionally, while APS Foundation of America, Inc. frequently updates its content, medical information changes rapidly, therefore some information may be out of date.


This is what is sent to you via Private Message when you join:

Welcome to APS Friends & Support Forum.

The APS Friends & Support Forum is brought to you by the APS Foundation of America, Inc (APSFA).  The APSFA is the only United States nonprofit health agency dedicated to bringing national awareness to Antiphospholipid Antibody Syndrome (APS), the major cause of multiple miscarriages, thrombosis, young strokes and heart attacks. We are a volunteer run, community based, 501(c)3 non-profit Public Charity organization and are dedicated to fostering and facilitating joint efforts in the areas of education, support, public awareness, research and patient services.  Our URL is http://www.apsfa.org

The APSFA works with our Medical Advisory team to bring you the most up to date information on APS, related diseases and syndromes.  The foundation, along with our Medical Advisors http://www.apsfa.org/medadvisory.htm write and review our newsletters http://www.apsfa.org/downloads.htm and contribute content to the website for the benefit of our members.  The APSFAs Medical Advisory Team includes nationally & internationally recognized experts on Antiphospholipid Antibody Syndrome.

The APSFA has designated June as “APS Awareness Month” and we are working hard to get this recognized nationally.  On the forum, you will see announcements on actions you can take to help spread APS awareness in your area and we also post progress that the APSFA is making.

The APS Friends & Support is a private forum and it is funded by the APSFA. This forum was created as a part of the APS Foundation of America, Inc Mission Statement and Goals http://www.apsfa.org/aboutusf.htm and is provided to you as a FREE service.

If you would like to see this forum continue, without charge, please show your support by donating to the APSFA by clicking here: http://www.apsfa.org/donate.htm  You can also show your support by purchasing items from our CafePress shop by clicking here: http://www.cafepress.com/apsfoundation  We have a number of one of a kind designs in our APS line as well as our Lupus, DVT, Baby Loss, FVL and other related lines.  100% of the profits from these products will go to the APS Foundation of America, Inc.

If you would like to have access to the full forum, you MUST post your introduction in the intro folder. You can post your intro at the following link:  http://www.apsforum.com/forum54/  Please start a *new* thread for your introduction.

Your introduction should include your first name (no last names, please), your location (city, state & country) and your APS story or how APS affects your life. Without this information, you will not be granted access to the full forum.
 
You will need to post your introduction within 6 months of the day you registered otherwise your account will be deleted to conserve bandwidth.  You will not receive a reminder to post your introduction when your 6 month mark is near.

The direct link to post in the introduction folder is: http://www.apsforum.com/new_topic.php?forum_id=54

If you are confused and need more assistance, please see our new member tutorial at: http://www.apsfa.org/forumtut.html

Please also be sure to review the rules before you start posting: http://www.apsforum.com/view_topic.php?id=15706&forum_id=4  You will be held responsible for knowledge of and required to follow the rules of the forum whether you have actually read them or not.  Ignorance of the rules will not be accepted as an excuse.

Please be sure to bookmark our forum status blog: http://apsfaforum.blogspot.com/This is where we update when the forum is down for more than 2 hours.

Please add @apsfa.org to your safe senders or white list on your email program so our reply will not be flagged as spam.  The apsfa.org staff cannot fill out forms to "prove" we are not spam.

Please Note: The Founders, Administrator(s), Assistant(s), Helpers, Greeter(s) & Staff of this forum are not medical doctors.  APS Foundation of America is not intended to replace standard doctor-patient visits, physical examination, and medical testing. Information given to members are only an opinion. All information should be confirmed with your personal doctor. Always seek the advice of a trained physician in person before seeking any new treatment regarding your medical diagnosis or condition. Any information received from APS Foundation of America is not intended to diagnose, treat, or cure. This site is for informational purposes only. Additionally, while APS Foundation of America, Inc. frequently updates its content, medical information changes rapidly, therefore some information may be out of date.
 
If you have any questions or concerns, feel free to email us at forum@apsfa.org. Our friendly staff members will be happy to assist you.

Thank you again for joining our forum, we look forward to getting to know you better.

APS Friends & Support Staff



____________________


Please Email us at staff@apsfa.org if you have any questions or concerns.

Past Newsletters can be found here: http://www.apsfa.org/newsletters.html
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APS Foundation of America is not intended to replace standard doctor-patient visits, physical examination, and medical testing. Information given to members are only an opinion. All information should be confirmed with your personal doctor. Always seek the advice of a trained physician in person before seeking any new treatment regarding your medical diagnosis or condition. Any information received from APS Foundation of America is not intended to diagnose, treat, or cure. This site is for informational purposes only. Additionally, while APS Foundation of America, Inc. frequently updates its content, medical information changes rapidly, therefore some information may be out of date.

If you think you may have a medical emergency, call your doctor or 911 immediately.

APS Foundation of America will be building a database with this information for future mailings. Please note that we will be listing all donor or purchaser's names on the Donor page of our foundation site. If you do not want your name listed, please contact us to opt out. Your information will be kept confidential and not sold to or shared with any third parties.

If you use the forum or chat room, you are solely responsible for your own communications, the consequences of posting those communications, and your reliance on any communications found in those areas. APS Friends & Support and its licensors are not responsible for the consequences of any communications in the forum or chat room. If you give your personal information to a host or other member and later threaten to hurt yourself or others we reserve the right to contact appropriate authorities, however, no guarantee is made that someone will contact emergency personnel for you. We are not equipped to handle these types of crisis situations. You should contact your local law enforcement agency immediately. If you think you may have a medical emergency, call your doctor or 911 immediately.

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